A side-effect of the steroid treatments is some puffiness in the limbs from retaining water. Quinn also cannot move his legs right now and the lack of movement causes the water to reside in the lower extremities. We try to keep Quinn's feet and legs elevated as much as possible, but its dificult with a little one. Overall he is making little improvements; more arm motion, better hand dexterity, and good head and neck control. We are trying to stay focused on the positives and we know we are so lucky just to have Quinn here with us. Many parents here at Children's are facing much more difficult situations. Thanks to everyone for all the thoughtful words, offers of help, and prayers. It is a tremendous comfort and we cannot express how much it means to us.
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